Lati ni imọ siwaju sii nipa awọn cystic fibrosis, Passeportsanté.net nfunni ni yiyan ti awọn ẹgbẹ ati awọn aaye ijọba ti o niiṣe pẹlu koko-ọrọ ti cystic fibrosis. O yoo ni anfani lati wa nibẹ Alaye ni Afikun ati awọn agbegbe olubasọrọ tabi awọn ẹgbẹ atilẹyin gbigba ọ laaye lati ni imọ siwaju sii nipa arun naa.

landmarks

France

Lilu cystic fibrosis

Ti a ṣẹda ni ọdun 1965, ẹgbẹ yii ni ero lati ṣe atilẹyin fun awọn alaisan ati awọn idile wọn ni ayika awọn iṣẹ apinfunni mẹrin: imularada, itọju, gbe dara julọ, ati igbega igbega. O tun ṣe atilẹyin fun iwadi.

Gregory Lemarchal Association

Ti a da ni ọdun 2007 lẹhin iku olorin Grégory Lamarchal ti o jiya lati cystic fibrosis, ẹgbẹ yii ni ero lati mu itunu ati didara igbesi aye awọn alaisan dara si ati igbega imo fun itọrẹ eto ara.

Association-gregorylemarchal.org

Canada

Canadian Cystic Fibrosis Foundation

Ti a da ni ọdun 1960, ipilẹ yii ṣe owo iwadi sinu cystic fibrosis. Ibi-afẹde ipilẹ ni lati pese awọn orisun ati alaye lati tọju daradara ati ṣakoso arun na. Awọn iwe pẹlẹbẹ wa lori ayelujara tabi nipasẹ aṣẹ, ni Gẹẹsi ati Faranse cystic fibrosis.ca

Cystic Fibrosis Quebec

Ẹgbẹ yii ni ero lati ṣe iranlọwọ fun awọn eniyan ti o ni cystic fibrosis ni Quebec, ni adehun pẹlu Canadian Cystic Fibrosis Foundation.

aqfk.qc.ca

Igbimọ Agbegbe fun Awọn agbalagba pẹlu Cystic Fibrosis

Ti a ṣẹda ni ọdun 1985, Igbimọ Agbegbe fun Awọn agbalagba Cystic Fibrosis (CPAFK) ṣajọpọ diẹ sii ju awọn agbalagba Quebec 500 pẹlu cystic fibrosis. Eyi jẹ igbimọ atilẹyin ti o tun ṣe ifọkansi lati ṣe igbega ati idaabobo awọn ẹtọ ati awọn anfani ti awọn agbalagba pẹlu cystic fibrosis ni Quebec.

cpafk.qc.ca

Itọsọna Ilera ti ijọba ti Quebec

Lati kọ diẹ sii nipa awọn oogun: bii o ṣe le mu wọn, kini awọn contraindications ati awọn ibaraenisọrọ ti o ṣeeṣe, abbl.

www.guidesante.gouv.qc.ca:

Belgium

Ẹgbẹ Belijiomu fun ija lodi si Cystic Fibrosis

muco.be

Swiss

Awujọ Swiss fun Cystic Fibrosis (SFCH)

cfch.ch

United States

Cystic Fibrosis Foundation

www.cff.org